So this happened on Friday Night & I am just now finding the guts to let it out.
I got my real 1st dose of "No you can't do that, you have CF" Firday Night. I have NEVER let CF define my son or any of our lives. I have let him do WHATEVER he has ever wanted (maybe some things I shouldnt have, cause he is a rotten butt) But I have NEVER said no you can't do that because of CF. Well I personally didnt tell him he couldnt do something but because of his G Tube placement this summer the Drs told him NO football. A direct hit to the stomach with a helmet or shoulder could dislodge his tube & that would be a HOT MESS, like for real. He acted like he didnt care & he said he really didnt want to play anyhow. I didnt let it bother me to much, I knew we would find other things for him to do that didnt invlove a helmet to the stomach. But as the season started and his brothers began to play & could tell it began to bother him. When the other kids at school would wear there jerseys or talk about Sats game, I could tell he was really missing it. When I took him to practice & he sat on the side & watched the kids his age practicing I could see the sadness in his eyes. As a mom it totally broke my heart. Well Friday night was the BIG stinger. We went to Robbie's Varsity Game. A bunch of kids his age were behind the bleachers in the grass playing football. He asked if he could go over. I said sure, being I stood right there. I was excited he was going out to try & make friends. He ran around and played and was having such a great time. They were just tossing the ball back & forth. Then they decided they had enough kids to play some touch ball. Well we all know how "Touch" ball turns out with a bunch of football boys. Adam was hiking the ball and the kids were telling him how great he did & asking him why he didnt play. He shrugged his shoulders & said "I just didnt want to". I could see the sadness on his face & it totally broke my heart. No way was he gonna tell the kids about his CF. Not when he was fitting in & nobody knew the wiser. Then the contact started. Adam running the ball and the kids grabing him around the waist. Hitting & pulling on his tube. He told the kids not to grab him around his waste over & over. I could tell he was getting so frustrated but no way was he gonna tell them "Hey don't grab me there I have a G Tube". He was grumpy on the ride home as I was sad & heart broken over the events of the night. When we got home his stomach was really red & sore. He says "Dont worry Mom, it don't hurt. I wanted to play" It broke my heart to see that CF had stoped him from playing football this year. And even though he said he didnt care he REALLY did want to play and he really DOES miss it. Just a real slap in the face. How is CF going to limit him as he get older & older. What will be next? I dont have to anwers, God knows I wish I did. I wish everyday I could just trade places with him. He is so much stronger than I could ever hope to be. CF is going to keep bringing it & we are just gonna have to be ready.... GAME ON!
