I guess I am a offically a blogger...whater that is suppose to mean. I am looking for outlets to focus my negative thoughts & energy & I thought I maybe I shared & wrote about them it woule help. So I thought I would give it a shot.
For those of you that don't know I am a mom to 3 wonderful boys. Robbie who is now 15, Justin who is now 11, & Adam who is 8. I have been with the love of my life for 17yrs. He is my rock. Yes we have out moments but as long as the good out weights the bad & our kids are gettting what they need & being loved by both their parents I think we are doing an awesome job. We may not be text book parents & we dont follow any hand book but I believe we are rasing good boys with beliefs & values of making a future for themseleves.
We have has quite a stressfull month with out littl one Adam. For those of you dont know he has a very extensive medical history. His Cystic Fibrosis & Crons have had him down & out for weeks now. The meds that are suppose to be making him feel better have swelt him up beyonf recgonation and dont seem to be really doing anythign else. They pain of the chrons has been intense for him and we have had to put him on morphine to keep him comfortable.
We have delt with a lot at CHKD. We are blessed to have a childrens hospital so close. I have no issues from a pulomnary stand point. His CF team stays on top of things & I feel very lucky to have them. The GI Team there is a total diffrent story. Pretty sure I think I could be more qualified than what we are dealing with. For a DR to scratch thier head I say "im not rally sure what is going on, he has me confused" is nt the best thing to say to a mother who has been going through literal hell with their child that past few weeks. And one thing i DO NOT handle well is seeing my child in pain.
So to make a long story short we will be going up tp John Hopkins in Baltimore next week. Hopefull we can get some answers from him & not a head scratch. I just hope & pray we are able to get himso relief so he can enjoy his summer. I will try & keep this updated with his progress. I know he has many family & frriends who care so much about him it would be impossible to call you all. Thank you all for your continued support, thoughts, & prayers as our family continues on this jouney.
<3
Christy
Blogger hugh......you do it all don't you. Great first post. Can't agree on the title though. You are such an GREAT STRONG AMAZING mother. Your love shows in so many ways for those boys. Because you are so strong it's made Adam so strong. No one off the street would know he suffers the way he does. I am confident that John's Hopkins will have an answer to making our little buddy better and to ease your mind. You guys are a wonderful family who are loved so much by many. I know we aren't close but I'd be there anytime you need anything. We'll be there next week and can't wait to hear the good news. Love you guys!!
ReplyDeleteJenn